Questioning the ‘Fertility’ Industry
Writer Christina Gombar first posed a provocative question about the ‘fertility’ industry lobbying efforts in 2009: Should IVF Coverage Be Mandatory? In a stand against RESOLVE’s stated goal to “control the conversation,” she agreed to let her 2009 post be shared further.
Should IVF Coverage Be Mandatory?
A couple of Decembers ago, I got an email from Resolve, the national infertility organization — a plea for end-of-year, tax-deductible donations. “Imagine a world where fertility treatment didn’t exist …” began the missive.
It had been years since I looked to Resolve for aid in my finally defunct effort to have a family. The organization then claimed to serve a dual purpose: to provide information and support to those pursuing children, and reconciliation to those who wind up without. But Resolve’s overwhelming number of communications and its only lobbying activities – urging Congress to pass laws to make insurance coverage for fertility treatment mandatory — were geared toward the baby quest.
So I deleted their emails after a quick skim. But having planted the idea of a world where fertility treatments didn’t exist, I couldn’t resist an honest answer: “I honestly wish they didn’t!”
This spurred an instant response, offering a plea for my “healing” – as if only a wrong-thinking person could even question the fertility system.
I hit the reply key, and then typed in: “The fertility industry makes those of us for whom the system didn’t work even more of an anomaly than we already are.”
Within minutes, a Resolve staffer called. She stressed that Resolve was there to listen to people like me.
“Good. All I’m saying is — if infertility is defined as an illness, then that makes those of us without children sick and abnormal, right? I can’t reconcile to my situation if society can’t reconcile itself to me. Plus – I have a real illness – having infertility over the age of 35 isn’t an illness, it’s biology.”
The staffer was dumbfounded.
I continued, “I’ve worked hard for the little financial security I have, so I’m really cheap and risk-averse. I knew most IVFs in my age group failed. If it were a stock, I wouldn’t have bought it. But because it was someone else’s financial risk – I gave it a shot. But I’d never have gambled on it with my own money. I’d never have got sucked into the emotional maelstrom. And if no fertility treatments existed at all, I’d have much more easily accepted my childless state. And so would the rest of the world.”
A lengthy conversation ensued. I insisted on a precise definition of infertility.
I explained that at 28 it’s an illness that should be cured, when possible, and paid for by medical insurance. At 48, IVF is an artificial prolonging of the motherhood timeline. Was it fair to make other policyholders in the insurance risk pool subsidize that?
Seems the once-taboo arguments Christina raised in 2009 are coming out into the open for debate. In Australia, lawmakers are considering whether to reduce coverage. At present the Australian government spends approximately A$240 million a year on fertility treatments. Even the American Medical Association Journal of Ethics in 2014 came down against a health insurance mandate for IVF after considering all the arguments made by advocates.
For a variety of troubling reasons we believe they have failed to prove that insurance coverage should be mandated to address this issue. Analysis of access to and utilization of ART in states with insurance mandates reveals major social and ethnic disparities, and, while mandating coverage in select states did make ART more broadly available to those with health insurance, it did not make the distribution of ART more equitable.
The journal authors concluded, “arguments about cost effectiveness remain unconvincing, given the complexities of both the technology and the outcomes being measured (pregnancy as distinct from live birth and a baby who makes it home from the hospital).”
In other words, the high failure rate of IVF is still too much of a gamble — and the house always wins.
“The house always wins.” Indeed. Evidenced by the fancy cars in the fertility clinic staff car parks.
I find this approach really interesting. I have always felt a bit uncomfortable with the definition of infertility as a disease – yes, if you’re in your 20s, but not necessarily if you’re in your 40s (or over 35, in fact, as Christine points out). Here in NZ, free IVF treatment (two cycles, provided only one egg is transferred each time) is limited to those under 40. It seems about right.
I do wish I’d been a fly on the wall during that discussion with Resolve though!
I hear you, but I think it should be covered within reasonable limits, because in the U.S. , very
few people have insurance which covers any fertility treatment at all. The end result is fertility treatment is simply not an option for people who aren’t wealthy. That’s not fair. Meanwhile, some wealthy people are tempted to go any length to conceive, sometimes at the cost of their health or marriages. This whole industry lacks sanity and balance.